CoDeEndo: Co-Designing, Evaluating, and Implementing Supportive Care for Endometriosis

Who can participate?

You may be eligible to participate if you are:

• Aged 18 years and above,
• Have endometriosis (and can provide evidence of diagnosis),
• Live in Australia,
• Proficient in English,
• Not pregnant,
• No endometriosis-related surgery in the last 3 months,
• Experiencing at least mild psychological distress,
• Experiencing no extreme dissociative symptoms, and
• Not currently participating in any other trial related to pelvic pain, endometriosis, or hypnotherapy.

Eligibility is also dependent upon mental health screening. You will not be able to participate if you experience substance use dependence, bipolar disorder, schizophrenia or psychosis.

What does the research involve?

Eligible participants will be randomly allocated to either the Waitlist Group or the Intervention Group. All participants will be asked to complete a Baseline Survey, Post Survey (8 weeks), and Follow-Up Survey (6 months), as well as brief weekly surveys. Waitlist participants will be given access to the CoDeEndo program after 6 months. Intervention participants will be given immediate access to the CoDeEndo program. Some participants may be invited to participate in an individual interview to provide feedback on their experience of the program.

The CoDeEndo program is an online, self-directed intervention with 9 modules co-designed with consumers and experts in the field. These include Education, Mindfulness, Acceptance & Commitment Therapy, Cognitive Behavioural Therapy, Hypnotherapy, Yoga, Physiotherapy, Dietary, and Relaxation. Modules contain a combination of video, audio, and written content, and self-reflection tasks.

How do I get involved?

People who are interested in taking part in the CoDeEndo Study are asked to review the Participant Information Statement and complete the Screening Survey via the website.

Please click on the link below for further information.